Listen to reflections from caregivers about their unique occupational folklife as they explore the topics of hospice and palliative care with University of Arizona healthcare professionals and folklorists.
Moderator: Kimi Eisele, Folklorist, Southwest Folklife Alliance
Panelists: Dr. Kimberly Shea, UA College of Nursing
Dr. Amalia Mora, Ethnographer.
Deborah Young, Caregiver.
Kimi Eisele, Co-Curator/Documentarian/Borderlore Editor, serves as SFA’s Communications Manager and Managing Editor of BorderLore. A graduate from the University of Arizona School Geography, Development and Environment she runs SFA’s Ethnographic Documentary Artist Cohort, convening writers, photographers, audio producers, and filmmakers to share resources, offer peer support, and deepen knowledge of regional folklife. She trains other documentarians in SFA’s methods and teaches workshops in story gathering, interviewing, and writing for publication. Her performance and literary works have long engaged communities in public participation around community topics. She has published essays in outlets such as Guernica, Longreads, Literary Hub, Orion, and other publications and is the author of the novel, The Lightest Object in the Universe (Algonquin, 2019).
Dr. Kimberly Shea, RN, FWN, CHPN is a Clinical Associate Professor at the UArizona College of Nursing and Assistant Professor of Practice at the UArizona Department of Biomedical Informatics. She serves as the Associate Director of Telenursing for the Arizona Telemedicine Program. Her clinical experience and certification are in hospice and palliative nursing. Her research studies have examined, 1) relationship building when technology moderates interactions among patient, nurse and caregiver; 2) patient integration of telemonitoring data into lifestyle choices, 3) Usability of iPad technology for symptom management, and currently, 4) Best practices using the Comprehensive Patient Assessment for Telehealth in the Home (CPATH) framework. Dr. Shea has presented locally, nationally and internationally on telehealth, in general, and telepalliative care, more specifically.
This program is produced by Arizona State Museum in collaboration with the Southwest Folklife Alliance in conjunction with the exhibit, Walking Each Other Home: Cultural Practices at End of Life, on display at ASM through February 25, 2023.